Hello everyone! I just can’t believe that that we are on the cusp of Labor Working day and summer time coming to a shut. The last 5 to six months have been a total blur and this summer season, in specific, has flown by. There is been hospitals (chemo, stem mobile harvest, operation), clinic appointments, and driving again and forth to New York.
But, a single foot in entrance of the other and a single day at a time, we are grateful to be heading into a new year with a solid boy and hearts full of hope.
Dominic experienced a chaotic 1st number of weeks of August…
🔍 Initial, he experienced a new set of scans (MRI + MIBG) furthermore yet another bone marrow biopsy. The scans nonetheless exhibit ailment in the course of his bones but most of the spots are “dimmer” than right before, and the bone marrow involvement lowered by more than 50%.
So, there is however work to do, but there is an enhancement. And! Dominic did equally of the scans with out anesthesia (he has been sedated earlier for the reason that you have to lay completely continue to and the MIBG is around 2 hrs). He’s a rock star.
🏥 Upcoming, he had his initially round of immunotherapy. The antibody he’s given targets the protein of neuroblastoma cells and considering the fact that they ordinarily sit on nerve cells, there is significant nerve soreness accompanying the treatment method. The infusion is small (45 minutes) but rigorous.
There is a large amount of pre-medication and suffering administration all through and after, and he would essentially snooze the complete rest of the day afterward. But, the treatments are outpatient so no healthcare facility stays, and they don’t effects counts like chemotherapy, so no neutropenia or blood or platelet transfusions.
🦸♂️ Then, he crossed off one more massive hurdle… radiation. He did this awake with no anesthesia as well… 2 times a working day for five times, he was strapped down using a exclusive mask that was molded to his head and upper body to continue to keep his head and neck in the specific similar placement every time (his clavicle was radiated because of to the cluster of diseased lymph nodes that had been there, as properly as the tumor mattress in his stomach). An amazing female who will work there has the kids decide on what they want their masks to be and then tailor made paints them… Dominic selected Iron Person. There are some extremely specific persons in this globe.
He could also decide whatever tunes he preferred to be piped in each time and chose Christmas tunes each individual working day 💕🌲 He entirely rocked it and the individuals doing the job there ended up unquestionably phenomenal.
➡️ Next… we get to be house for a pair of months, then it’s back to NY for an additional round of immunotherapy, a new established of scans, and a different bone marrow biopsy.
📘 In the meantime, he began kindergarten this week! He’ll be signing up for course just about until his oncologist gives him the go-in advance to go to in person, which we’re hoping will be late September.
💈 His eyebrows, eyelashes, AND hair have all started off rising again! He’s experienced a ton of electricity, has acquired back all of the weight he misplaced following operation and that previous round of chemo and is if not performing actually, actually properly.
❤️ Thank you all for your ongoing prayers, it implies so a great deal to our relatives.
In other information, I am setting up to get some e-mails scheduled out heading into the tumble and holiday break year to refresh some web site material. So, you can glimpse ahead to me popping into your inbox a lot more often in the coming months 🎉